Research Proposals

The NGOR can be used as a platform for hypothesis-driven research projects. Access to NGOR data is restricted to ensure that participants’ privacy is protected.

Researchers or institutions who would like to request access to de-identified aggregate NGOR data will be required to:

  1. Contact the NGOR Coordinator to discuss your research proposal, the application process and request the data access form
  2. Submit a completed data access form to, with a HREC Approval Certificate and other relevant documentation for review by the NGOR Steering Committee

Please note:

  • Clinicians contributing data to the registry can request their own data from the NGOR Coordinator at no charge
  • Researchers submitting data requests for external research purposes may be charged a fee
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