The NGOR can be used as a platform for hypothesis-driven research projects. Access to NGOR data is restricted to ensure that participants’ privacy is protected.
Researchers or institutions who would like to request access to de-identified aggregate NGOR data will be required to:
- Contact the NGOR Coordinator to discuss your research proposal, the application process and request the data access form
- Submit a completed data access form to firstname.lastname@example.org, with a HREC Approval Certificate and other relevant documentation for review by the NGOR Steering Committee
- Clinicians contributing data to the registry can request their own data from the NGOR Coordinator at no charge
- Researchers submitting data requests for external research purposes may be charged a fee