PEER-REVIEWED PUBLICATIONS

2020

Heriot, N., Brand, A., Cohen, P., Hegarty, S., Hyde, S., Leung, Y., Zalcberg, J. R., & Rome, R. (2020). Developing an Australian multi-module clinical quality registry for gynaecological cancers: a protocol paper. BMJ open, 10(2), e034579. https://doi.org/10.1136/bmjopen-2019-034579

2023

Evans, S. M., Ivanova, K., Rome, R., Cossio, D., Pilgrim, C. H. C., Zalcberg, J., Antill, Y., Blake, L., Du Guesclin, A., Garrett, A., Giffard, D., Golobic, N., Moir, D., Parikh, S., Parisi, A., Sanday, K., Shadbolt, C., Smith, M., Te Marvelde, L., & Williams, K. (2023). Registry-derived stage (RD-Stage) for capturing cancer stage at diagnosis for endometrial cancer. BMC Cancer, 23(1), 1222. https://doi.org/10.1186/s12885-023-11615-6

2024

Lefkovits, Y. R., Heriot, N., Sporik, A., Perera, S., Friedlander, M., Dixon, C., Cohen, P. A., Lee, Y. C., Hyde, S., Richardson, G., Webb, P., Rome, R., King, M., Zalcberg, J., & Schofield, P. (2024). Incorporating patient-reported outcome measures (PROMs) into a clinical quality registry (CQR) for ovarian cancer: considerations and challenges. BMC Health Services Research, 24(1), 778. https://doi.org/10.1186/s12913-024-11042-8

PRESENTATIONS

2024

Burling, M. on behalf of the NGOR Rare Tumour Working Group. Patterns of surgical care for patients with Sex Cord Stromal tumours in the National Gynae-Oncology Registry (NGOR) in Australia. Australian Society of Gynaecological Oncologists (ASGO) Annual Scientific Meeting. Hobart, March 6th-9th 2024 (Oral Presentation)

Whitely, A., Nguyen, T., Naidoo, M., Rome, R., Perera, S., Farrell, R., Anderson, L., Lee, Y. C., McNally, O., Sandhu, S., Knights, T., & Zalcberg, J. Clinicopathological characteristics and survival by tumour MMR status for individuals with endometrial cancer in Australia: real-world findings from the National Gynae-Oncology Registry. Australia and New Zealand Gynaecological Oncology Group (ANZGOG) Annual Scientific Meeting, Wellington, New Zealand, April 22nd-24th 2024 (Poster Presentation)

Knights, T., Perera, S., Sandhu, S., Brand, A., Mellon, A., Nguyen, T., Whitely, A., Naidoo, M., Rome, R., & Zalcberg, J. Predictors of survival for endometrial cancer in Australia: Data from the National Gynae-Oncology Registry. Australia and New Zealand Gynaecological Oncology Group (ANZGOG) Annual Scientific Meeting, Wellington, New Zealand, April 22nd-24th 2024 (Poster Presentation)

Naidoo, M., Scott, C. L., McNally, O., Rome, R., Perera, S., Lee, Y. C., Whitely, A., Burling, M., Anderson, L., Cohen, P., Richardson, G. E., Friedlander, M., Brand, A., Hyde, S., Bunting, M., Jobling, T., & Zalcberg, J. R. (2024). Overall survival and patterns of care for women with rare ovarian cancers: A prospective study from the Australian National Gynae-Oncology Registry (NGOR). American Society of Clinical Oncology (ASCO) Annual Meeting, Chicago, Illinois, May 31st – June 4th 2024 (Online Abstract). https://doi.org/10.1200/JCO.2024.42.16_suppl.e17554

2023

Perera, S., Brand, A., McNally, O., Farrell, R., Hyde, S., Jobling, T., Bunting, M., Mohan, R., Cohen, P., Oehler, M., Richardson, G., Lee, YC., Friedlander, M., Sporik, A., Whitely, A., Zalcberg, J., Rome, Robert. Patterns of Ovarian Cancer Care in Australia: Findings from the Ovarian Cancer Registry. Australia and New Zealand Gynaecological Oncology Group (ANZGOG) Annual Scientific Meeting, Brisbane, Australia, March 22nd-24th 2023 (Oral Presentation)

Naidoo, M., Scott, C., McNally, O., Rome, Robert., Zalcberg, J. Patterns of BRCA genetic testing and subsequent treatment with PARP inhibitors for women with non-mucinous epithelial ovarian cancer across Australia: A prospective cohort study from the National Gynaecology Oncology Registry (NGOR). Australia and New Zealand Gynaecological Oncology Group (ANZGOG) Annual Scientific Meeting, Brisbane, Australia, March 22nd-24th 2023 (Oral Presentation)

Whitely, A., Rome, R., Cohen, P., Anderson, L., Burling, M., Naidoo, M., Richardson, G., Scott, C., Perera, S., McNally, O., Brand, A., Hyde, S., Friedlander, M., Jobling, T., Zalcberg, J., Lee, YC. Patterns of care in patients with non-epithelial ovarian cancers in Australia: insights from the National Gynae-Oncology Registry. Australia and New Zealand Gynaecological Oncology Group (ANZGOG) Annual Scientific Meeting, Brisbane, Australia, March 22nd-24th 2023 (Poster Presentation)

Kaloupis, G., Perera, S., Sporik, A., Alsop, K., McNally, O., Do, V., Ananda, S., Rome, R., Bunting, M., Hyde, S., Richardson, G., Jobling, T., Pendlebury, A., Brand, A. Predictive Factors and Stage at Diagnosis in Endometrial Cancer Incidence: A National Gynae-Oncology Registry Pilot Study. Australia and New Zealand Gynaecological Oncology Group (ANZGOG) Annual Scientific Meeting, Brisbane, Australia, March 22nd-24th 2023 (Poster Presentation)

Naidoo, M., Scott, CL., McNally, O., Rome, R., Perera, S., Zalcberg, JR. Patterns of ovarian cancer care in an elderly population in Australia: A prospective cohort study from the National Gynaecology Oncology Registry (NGOR). American Society of Clinical Oncology (ASCO) Annual Meeting, Chicago, Illinois, June 2nd-6th 2023 (Poster Presentation)

Naidoo, M., Scott, CL., McNally, O., Rome, R., Perera, S., Zalcberg, JR. Comparison of BRCA genetic testing and subsequent treatment with PARP inhibitors (PARPi) for ederly vs non-elderly women with non-mucinous epithelial ovarian cancer (EOC): A large prospective cohort study from the Australian National Gynaecology Oncology Registry (NGOR). American Society of Clinical Oncology (ASCO) Annual Meeting, Chicago, Illinois, June 2nd-6th 2023 (Online Abstract)

Knights, T., Perera, S., Sandhu, S., Nguyen, T., Whitely, A., Naidoo, M., Rome, R., Zalcberg, J. Exploring opt-out rates for the National Gynae-Oncology Registry’s ovarian and endometrial cancer modules. Australian Clinical Registry Annual Scientific Meeting, Melbourne, Australia, October 19th-20th 2023 (Poster Presentation)

2022

Rome, R., Whitely, A., Sporik, A. & Zalcberg, J. The National Gynae-Oncology Registry Update. Australian Society of Gynaecological Oncologists (ASGO) Annual Scientific Meeting. Melbourne, April 28th 2022 (Oral Presentation).

Sporik, A,. Perera, S.M., Schofield, P., Cohen, P., Hyde, S., Hegarty, S., Heriot, N., Russell, H., Zalcberg, J (2022, November) Interest in sexual activity following ovarian, tubal and peritoneal cancer treatment: a mixed-methods study [Poster presentation]. Clinical Oncology Society of Australia, Brisbane, Queensland.

Perera, S.M., Sporik, S., Schofield, P., Cohen, P., Hyde, S., Hegarty, S., Russell, H., Heriot, N., Zalcberg, J. (2022, November). The EORTC QLQ-C30 and QLQ-OV28 for PROMs data collection in the National Gynae-Oncology Registry: A thematic analysis of the perspectives and content needs of women with ovarian cancer. [Poster presentation]. Clinical Oncology Society of Australia, Brisbane, Queensland.

2021

Rome RM, Zalcberg J, Bunting M, Brand A, McNally O, Do V, Ananda S, Steane, H, Stenlake A, Vicario E, Heriot NR, Sporik AV. PROGRESS TOWARDS A NATIONAL GYNAECOLOGICAL ONCOLOGY REGISTRY MODULE 2: ENDOMETRIAL CANCERMelbourne, Australia, Epworth Healthcare Research Week, October 2021 (Poster Presentation)

2020

Rome RM, Zalcberg J, Brand A, McNally O, Do V, Ananda S, Stenlake A, Vicario E, Heriot NR, Sporik AV. DEVELOPING A CLINICAL QUALITY REGISTRY FOR GYNAECOLOGICAL CANCERS, Melbourne, Australia, Epworth Healthcare Research Month, October 2020 (Poster Presentation)

2019

Brand A. on behalf of the NGOR Steering Committee. Preliminary Findings from Piloting a National Clinical Quality Registry for Ovarian Cancer Informed by Pre-Existing Clinical Databases. Australia and New Zealand Gynaecological Oncology Group (ANZGOG) Annual Scientific Meeting, Melbourne, Australia, March 20th – March 23rd 2019 (Oral Presentation)

Heriot N., Zalcberg J., Rome R. on behalf of the NGOR Steering Committee. The National Gynae-Oncology Registry. Australian Society of Gynaecological Oncologists (ASGO) Annual Scientific Meeting; Sydney, June 7th 2019 (Oral Presentation)

Heriot N., Hatton A., Zalcberg J., Rome R. on behalf of the NGOR Steering Committee. Preliminary Findings from Piloting a National Clinical Quality Registry for Ovarian Cancer Informed by Pre-Existing Clinical Databases. Alfred Health Research Week June 2019. (Poster Presentation)

2018

Rome R. on behalf of the NGOR Steering Committee. Developing Quality Indicators for an Australian Clinical Quality Registry for Ovarian Cancer. Australia and New Zealand Gynaecological Oncology Group (ANZGOG) Annual Scientific Meeting, Brisbane, Australia, April 4th – April 7th 2018 (Poster Presentation)

Rome R. on behalf of the NGOR Steering Committee. The National Gynae-Oncology Registry (NGOR): Establishing a multi-module clinical quality registry for new primary gynaecological malignancies. Australian Society of Gynaecologic Oncologists (ASGO) Annual Scientific Meeting, Taupo, New Zealand, July 4th – July 7th 2018 (Oral Presentation)

Zalcberg J. The Ovarian Cancer Clinical Quality Registry Pilot: Progress & Challenges. Ovarian Cancer Australia Symposium, Melbourne, Australia, May 5th 2018 (Oral Presentation)

2017

Rome R. on behalf of the NGOR Steering Committee. Progress towards the establishment of an Australian Ovarian Cancer Clinical Quality Registry. Australia and New Zealand Gynaecological Oncology Group (ANZGOG) Annual Scientific Meeting, Melbourne, Australia, March 29th – April 1st 2017 (Oral Presentation)

Heriot N., Zalcberg J., Rome R., and Scarborough R. The National Gynae-Oncology Registry: Piloting a Novel, More Cost-Effective Model of Clinical Quality Registry Data Collection in an Effort to Improve Australian Gynaecological Cancer Patient Outcomes. The Association of Regulatory and Clinical Scientists to the Australian Pharmaceutical Industry (ARCS) Annual Conference, Sydney, Australia, August 22nd – August 24th 2017 (Poster Presentation)

Rome R. on behalf of the NGOR Steering Committee. Progress towards an Ovarian Cancer Clinical Quality Registry. Australian Society of Gynaecologic Oncologists (ASGO) Annual Scientific Meeting, Broome, Australia, May 3rd – May 7th 2017 (Oral Presentation)

STUDENT PROJECTS

2022

Dr Mahendra Naidoo (PhD)

Dr Naidoo’s research focused on patterns of care across Ovarian Cancer using the NGOR’s data on diagnosis treatment and clinical outcomes of patients. He will explore how practice across centres and states aligns with optimal ‘best practice’ guidelines. Sub-groups of the NGOR population will also be assessed including somatic/germline BRCA and outcomes for women with rare ovarian cancers.

Jessica Ravindran (Honours)

Jessica completed her honours project as part of her Bachelor of Science, in October this year. She explored the accuracy of ovarian cancer comorbidity data using three different data sources; the NGOR data, hospital medical records and ICD-10 codes. She then determined what is the best comorbidity index to be used in a clinical quality registry.

Yijie Neo (Cabrini Research Scholarship – winner of the Medical Student Category)

“Patient selection for interval debulking surgery in ovarian cancer – a review of current guidelines.” 

Amanda Nguyen (Cabrini Research Scholarship)

“Comparing Australian and international clinical quality indicators for cervical cancer.”

Georgia Kaloupis (Scholarly Intensive Placement – Monash University)

“Association between endometrial cancer stage at diagnosis and age,
menopausal status and body mass index using data from the National Gynae-Oncology Registry.”

Mahima Jain (Scholarly Intensive Placement – Monash University)

“Synoptic reporting in oncology – A literature review.”

Abigal Takyi

“Real world germline and somatic BRCA and other homologous repair deficiency testing in women with epithelial ovarian cancer in high income countries: A Narrative Review.”

2021

Joel Zimmerman

“A Review of the Charlson Comorbidity Index and a Preliminary Evaluation of the Ovarian Cancer Comorbidity Index within the Context of The National Gynae- Oncology Registry.”

Joel Applied and compared the ovarian cancer comorbidity index (OCCI) to the age adjusted comorbidity index (ACCI) in an Australian ovarian cancer patient registry.

Lauren Frisken

“Comorbidity data – levelling the playing field for ovarian cancer clinical quality analysis.”

 

Links for Data Managers

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